Silent Auction: Rally For Rare Disease

Our Rally for Rare Disease Silent Auction is more than just a chance to win incredible local experiences—it is a direct investment in a brighter future for children living with Kleefstra Syndrome (KS).

Held in honor of Rare Disease Day, the proceeds from this auction go to IDefine to accelerate life-changing gene therapy research and clinical centers of excellence. This work is at a critical inflection point, with major breakthroughs planned for early 2026.

By bidding on these items, you are helping my 13-year-old daughter, Adelind, and the global KS community gain access to transformative medical care and a more independent life.